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Holly Kordasiewicz

Sep 2026 • linkedin

Post excerpt

Throughout my time at Ionis, I’ve had the privilege of working alongside incredible teams to help make a treatment for Alexander disease (#AxD) a reality. Today, that collective work culminated in the FDA’s approval of the first and only disease modifying treatment for people living with AxD. We’ve heard directly from people living with AxD and their families about the urgent need for a treatment designed to address the underlying cause of disease. Their experiences, resilience and determination have been a consta…

87 reactions • 3 comments

#AxD#AlexanderDisease#RareDisease
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